I wrote the following words on June 10, 2021. By this time, we were four years into Doug’s cancer journey. He was on a feeding tube for the majority of his nourishment. I wonder what prompted this. There is still so much to be grateful for more than 2 1/2 years after our painful goodbye. Maybe someone will be inspired by these words to find gratitude in their life where it is seeming chaotic or insufferable. Namaste
From My Journal:
I am grateful for the little miracles that I might otherwise not notice. These are the little things that in the rush of life can be overlooked. But when I am deep in the trenches of overwhelm a little miracle can open my heart and help me breathe. These are not the things written on billboards or posted online. These are things like someone holding a door for me, finding just enough money to buy a cup of tea, an open cashier when I’m in a hurry, and a note from an old friend who just wants to say they care.
I am grateful for people who say stupid things when they hear our news. They remind me that most of us don’t know what to say or do when faced with someone’s deep pain. I realize that it is my right to choose who I share with and how much I share. I circle my wagons and reach out to those who can be ‘with’ my despair.
I am grateful for the medical people who do their best to support us through our diagnosis and treatment. Sometimes they don’t seem to get what it’s like to be a patient, but I remember that while their best at any given time might not be what I need, they too are navigating unknown territory. They don’t know us, and we don’t know them. We have been brought together by bizarre, unwanted circumstances and they use what they have from their training in the best way they can.
I am grateful for the days when the skies are clear and the traffic is manageable. It is just one more blessing to not have to plow through snow or rain or sleet and sit for hours in deadlocked traffic. I am so happy for those days when the trips are smooth and feel coordinated by some divine power that knows I just need a break on the roads today.
I am grateful for the people who brought me soup and offered to treat me to lunch. Having to think about what to feed myself and how to sustain my energy has been so far down the priority list. Even if I decline, it brings comfort to know I’m thought of and I feel lucky to have kind people offering to nourish me.
I am grateful for the people who call again even when I haven’t returned their calls. In the sometimes suffocating void I find myself in, it is reassuring to know that there are people who will love me for who I am and not for what I do. It is a blessing to know that when I don’t have the strength or presence of mind to answer every call, I still have people who are standing with me.
I am grateful for all the life lessons I’ve learned so far that have helped me make decisions and handle tasks I never dreamed I’d have to do. Where would I be without all the wisdom I’ve gleaned from my life experiences and from witnessing how others have managed through tough times.
I am grateful for pharmacists who come out from behind those high counters to slowly repeat instructions and answer questions with so much patience. They see through my tears and frustration and patiently review the prescriptions with me so I feel confident. And they take my calls when I get home and realize I had just one more question.
I am grateful for my own healthy body that even with the odd malfunction carries me through yet another long day. My legs and arms and lungs and heart just keep me moving forward when I doubt I have the energy to face another hour or sometimes minute.
I am grateful for sunrise which means I get another shot at life and this journey is not over yet. With each new day there is hope and possibility. I am so thankful that I get to climb out of bed and show the world what I’m made of; show myself how resilient I am no matter what.
I am grateful for long wait times in hospitals because I know that the staff are giving the patients ahead of us their full attention. No one’s care is being compromised to keep to a strict schedule. The waiting gives us time to ‘people watch’ and appreciate how far we have come on this journey.
I am grateful for what is still left of our ‘old’ lives considering how much has been taken away. It can feel as if all that has been normal for us is in the distant past but if I take a few deep breaths to ground myself and look honestly at our lives now, I see there is still some precious pieces of who we were. I am so very grateful for all of that.
I am grateful for that unseen, unconscious will within me that keeps getting back up, no matter what. Each time I pull myself to my feet and do the next right thing, I know I am tapping into a resource that is as solid as the earth. I wonder at my own resilience and yet I know buried deep inside is a powerful energy that is committed to life and living. I’m glad I can count on that when I am not sure I can get through the day.
I am grateful for the comfort and safety of my home. Even though it has been distorted with medical equipment and files and sometimes strangers, it is still my home. It is still our home. We have made memories here and pieces of our lives are on display everywhere. I am glad I can touch these little symbols of a life of meaning and joy.
I am grateful for the all the times I did what felt right even if it didn’t make sense to anyone else. When I trust my instincts I reinforce my belief that my opinion is important and that I am doing what I feel is best for us. I need to know that I am not just a player but an active member of the healing team.
I am grateful for the people who treated my loved one like any other normal person having conversations that were not about health issues. It is so rewarding to listen to chatter about the state of affairs in the world, other people’s children, the traffic, the weather, a good sale on something and how to keep up with technology. It all makes us feel as though we are not living on an island so I’m glad people still see us as regular human beings.
I am grateful for those moments when a health care provider realizes that slowing down and listening is exactly what is needed in the moment.
I am grateful for the health plans and resources that help us pay for all the care and materials needed. Not everything is covered but it is still a blessing to know that at least a portion of what we have to have for survival is taken care of.
I am grateful for the freedom to have a good long cry when I reach my limit. There is a cleansing that happens when I sob from my heart without sanctioning my actions. I am so glad I get to do this whether it is in a closet, on a walk, lying in bed, at the kitchen counter. And I’m grateful for the space to cry alone and occasionally in the company of a kind heart.
I’m grateful for all the years we had together before we were blind-sided by this medical invasion. I will remember how carefree we lived and hold onto the joy of all we cherished. I am very thankful for golden memories of special times together.